Chloe is an 8 years old energetic kid like no other. Chloe was diagnosed with Koolen De Vries
Syndrome on her first birthday in 2011, but this hasn’t stopped her from being like any other
Chole loves to hang out with her friends and family. When she’s not at school she is either
doing therapy, dancing or chilling with friends or family. Chloe is a cuddly and affection
person that makes you smile whenever you spend time with her. Chloe loves the 80’s music
espically Frank Sinatra’s songs, her favourite colour is purple, and she loves food, but her
favourite meal is lasagne.
The first few years of Chloe’s life was spent in and out of hospital. Through having surgeries,
trialling different medications to help her control her epilepsy and for her sleep. She has
also had speech therapy, physiotherapy, occupational therapy and educational services.
Throughout the first few years of Chloe’s life she has had several hospital appointments and
overnight stays due to surgeries, trialling different medications to help her control her
epilepsy and for her sleep. She has also had speech therapy, physiotherapy, occupational
therapy and educational services.
What is Koolen De Vires Syndrome?
Koolen De Vires Syndrome is a genetic syndrome which includes the 17 th chromosomes and
causes developmental delays. Which causes learning difficulties and can cause a number of
other health concerns.
Chole always makes you smile even if you are having a bad day
You can follow Chole’s journey here
Oder aa te-shirt now to help Chloe and her family. With every te-shirt that Okè the Label
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